Friday, November 7, 2025

My Journey of Resilience with Cancer

 “A LOVE LETTER TO MY MOTHER”

After leading a very healthy lifestyle for decades, I was diagnosed with stage two ovarian cancer in 2020. This came at an incredibly challenging time just 8 months after Covid. One of the secrets of going through life is how you handle unexpected obstacles that come your way and the amount of emotional hardiness you have to deal with these challenges.

Although she was deceased at this time, my mother provided the strength I needed to live my life after being diagnosed with cancer. It is profound how my memories of the lessons she imparted continued to guide me, even after her passing. Her strength and the love she demonstrated when she was alive, likely served as a powerful source of inspiration during my most challenging times.

Through my cancer journey, my mother’s influence encouraged optimism, kindness and resilience. I thought I would share some of these lessons I learned from my mother which helped me through my cancer nightmare.

My Mother’s Lessons: Strength in her Wisdom

Doing for Others


My mother modeled doing kind gestures for others. She would bring over food if someone had surgery, was not feeling well, or was grieving over the loss of a loved one. If a neighbor needed assistance, especially if they lived alone, she would check in on them to make sure they had what was needed.

For me, her positive actions modeled the importance of helping in ways that improved the lives of others. Her caring and compassionate nature enabled me to be compassionate with other cancer patients, many who had worse diagnoses than me.

Love and Resilience

Growing up my mother was a latch key kid. Because of this, she always wanted to be home when I came home from school at the end of the day. She had the choice to take two part time jobs that allowed her to be home when I arrived. This experience allowed me to recognize the importance of support from family.

She was a great listener when I had problems at school or with friends. She provided the support I needed without judgement and was always present to offer me empathy, by providing a safe space for me to express myself.

Her modeling gave me confidence to offer emotional support to others in my nursing career and as a health advocate. Her modeling helped me listen to and support other cancer patients I met during and after my own treatment.

Perseverance

As I reached adulthood, my mother taught me that when faced with problems to always look at the glass as half full. Focusing on the positive side of what one has and can control, rather than what is missing. This allowed me to have hope as I underwent chemotherapy.

My mother worked tirelessly to provide for my brother and myself during difficult times. She always prioritized her children with her unwavering commitment to our well-being. This helped me when I am in meetings with other health professionals discussing the best options for my patients and communicating their needs to the physicians and other family members.

My mother’s reactions to my father being out of work for a year and her own surgeries over the year helped me understand how important it is to overcome setbacks and bouncing back after losses. Her resilience laid the foundation for how I have navigated my own challenges, especially during such a difficult time as cancer treatment and survivorship.

It provided a unique perspective on my perseverance and healing, not just physically but emotionally and mentally as well. This experience has influenced the way I approach my work with patients who face similar circumstances.

Continuous Learning

My mother deeply valued education. She encouraged me to be curious and embrace new experiences, and always sought opportunities to expand my knowledge. She frequently took me to the library, encouraged me to read in order to learn new things and was a voracious reader herself.

When I was diagnosed with cancer, my husband and I read everything we could from valid sources on the internet about cancer, treatment options and clinical trials to try to understand what was happening to me.

Finances


When it came to finances, my mother was very practical and had a no-nonsense approach. She coached us not to spend money we did not have and the importance of saving money. Her foundational lessons included how to handle money, by not spending above our means and prioritizing savings. This helped me to evaluate expensive treatment and genetic testing options.

Nutrition

I was brought up in a household that generally ate healthy foods. When I got to be around fourteen, my mother enrolled in a Weight Watcher’s program and lost 35 pounds. She was asked to become a Lecturer for them and was offered a franchise in a nearby state. She refused the franchise, but took the job as a lecturer in our state of Rhode Island. It was at this time that she transitioned our family to the Weight Watchers diet. In the seventies, this diet was based on a system of points and exchanges for fruits, vegetables, milk, bread, fat, and protein. Our family did not participate in the points, but we all increased our knowledge of healthy eating habits.

Her journey with Weight Watchers not only led to her personal success but also shaped the way our family approached food and nutrition. Our family focused on the educational aspect and making healthier decisions overall. That made a profound change in my eating habits and influenced my wanting to increase my knowledge base by taking courses on how food affects one’s health.

This increased knowledge has helped me assist my patients in making informed decisions about their health and connect with them in a more meaningful way.

Discussion about Death

Going through this experience for myself, I learned how stories from the past, movies, books memories, and time with friends, can provide needed escape if we let them. These escapes offer a kind of magic-helping sustain us through difficult times.

As a very young girl, I had a specific question about the timing of death for both my mother and myself. When I told my mother I wanted to die the exact same time she did, she explained how we will both face death at different times in our lives. I was very upset that I would not be able to find her in heaven and kept asking “how will I find you if we die at different times”?

My home address growing up was “19 Pilgrim Drive”. My mother went on to explain that when I die and reach heaven, I can look for our address, go to our street and then I will find her at our home. The idea of finding my home address, along with my mother was a simple yet profound testament to the depth of her understanding of my younger self, along with the fear of being separated from her.

The connection my mother fostered between us has significantly increased my comfort level in engaging with others on deeply personal topics. By listening to individuals' stories and discussing the subject of death with my patients, friends, and family, I have developed a greater sense of understanding and empathy. This ability to navigate such sensitive conversations has not only deepened my relationships but also allowed me to support others in more meaningful ways.

She taught me to face life with resilience, always strive for kindness, prioritize family, embrace learning, never stop growing, and to always be grateful for the little things, navigating challenges with a positive attitude and unwavering support for myself and others. Looking at life with optimism and hope fosters emotional fortitude and resilience.

This mindset has empowered me to face challenges with strength, and I encourage other cancer patients to draw strength and hope from their own personal experiences, just as I have. By embracing a hopeful perspective, we can cultivate the inner resilience needed to navigate the toughest moments.

Linda Winkler Garvin ©

Linda Winkler Garvin, MSN
Health Advocacy & Consulting
President & Founder, Patient Advocate Bay Area, Inc.
Ambassador & Advocate for The Clearity Foundation

E-mail: lindawgarvin@gmail.com
Phone: (510) 520-0186
Web: patientadvocatebayarea.com


Thursday, November 6, 2025

Helpful Guidelines to Improve Your Chemotherapy Experience: Tips for Comfort and Support

 

When I went through chemotherapy, I made a very long list of the essential items I thought I needed. Although some cancer web sites have information related to this subject, I found that the lists did not always cover the full spectrum of needs that can really improve comfort during treatment.

Everyone’s experience with chemotherapy is so personal, and having a list that’s tailored to your specific needs and preferences makes a big difference. My idea was to create a more comprehensive list based on my personal and work experiences as it can address a wide range of comfort and emotional support needs for each person.

My list is organized it into categories for easier reference. Since chemotherapy sessions can be long and challenging, it is important to bring items that will help you stay comfortable, entertained, and supported during your sessions.

Reaching out to the chemotherapy center beforehand can help you feel more prepared and less anxious. You can ask about things like what to bring, any specific instructions for the day of your treatment, or if there are any side effects you should expect. It is also a good opportunity to clarify any logistical details, like parking or how long the treatment might take.

USEFUL ITEMS TO BRING TO CHEMOTHERAPY ORGANIZED INTO SECTIONS:

Practical items to bring with you:

  • Write down the name, address and phone number of the place where you will have treatment.
  • Bring a list of questions for your nurse or physician.
COMFORT & PERSONAL CARE
  1. Comfortable clothing: It can get very cold during your treatment. Loose, warm layers, along with a scarf or blanket.
  2. Assistive devices: Glasses for reading, hearing aids or mobility equipment ( a cane, walker…).
  3. Head warmth: A scarf and/or beret to keep your head warm.
  4. Body warmth: Consider bringing an extra sweater or sweatshirt.
  5. Socks: Warm socks are important and will enhance your comfort.
  6. Pillow/Blanket: A small pillow for your head or back. My chemotherapy was given in a basement that was very cold. I brought an electric blanket that I found made me very comfortable.
  7. Liquids: Staying hydrated is important. You may want to bring your own filtered water or your own mug and tea bags or a thermos of coffee. Some individuals prefer peppermint tea to relax their stomach or ginger tea to prevent an upset stomach.
  8. Snacks: Non-perishable snacks like nuts, saltines, a hardboiled egg, peanut butter on bread or protein bars-low in sugar for energy. For long chemo sessions, it may be a good idea to bring a sandwich or yogurt.
  9. Lip balm: Chemotherapy can dry out your lips. I did not have an issue with dry lips, but this may be helpful to bring along.
  10. Hand sanitizer: For hygiene.
  11. Tissues: For any unexpected runny nose or tears.
  12. Moisturizer: To help with dry skin, often a side effect of chemotherapy. I applied this at home after my treatments.
ENTERTAINMENT & DISTRACTION
  1. Reading: Books, magazines, I-pad, i—phone or tablet help the pass the time. These devices can also be used to watch movies, watch TV programs or to play games.
  2. Music/Headphones: Ear Pods can create a calming environment as you listen to your favorite tunes. Relaxation CDs that you have downloaded to your phone or I-pad.
    HINT: Many times, you may need to download CDs or movies to your i-pad and phone due to poor connectivity. This is a question you can ask your chemotherapy center.
  3. Notebook/journal: For jotting down thoughts, questions for your doctor, or keeping track of side effects.
  4. Chargers: Bring all chargers that go with your electronics
COMFORT AND MEDICATION
  1. Medication: Any pain relievers, nausea meds, or other prescriptions as prescribed by your doctor. O-T-C medications for headaches or discomfort associated with your treatment that have been approved by your physicians.
  2. Metallic taste: Chewing gum or mints may help with any metallic taste or nausea. Ginger mints and/or tea can help with nausea.
  3. Cold packs/heat packs: May decrease muscle soreness and help if you get a headache.
BOOK AND/OR A JOURNAL WITH A PEN OR PENCIL
  1. Support person: If possible, consider bringing a friend or family member to help with transportation and offer emotional support. (I had a head cap called a Penguin Cap) for all my treatments to decrease hair loss.) There was an assigned person that I paid, who took care of the work involved so I chose not to have any additional individuals in my room, which worked out well for me.
  2. Emergency contact numbers: Have your doctor’s number and a trusted person’s contact information on hand.
DON’T FORGET:
  • To ask the facility what type of Identification you need to bring to your treatments
  • Bring a large bag i.e. a duffel bag or backpack to carry everything.
  • Put your items together ahead of time, so you are as relaxed as possible on the day of your treatment.
You may find that you want to adjust what you bring after the first treatment, but hopefully with this list, you will feel prepared. Bringing the right items can help make your chemotherapy experience more manageable and even a bit more comfortable and may decrease your stress.

Linda Winkler Garvin, MSN
Health Advocacy & Consulting
President & Founder, Patient Advocate Bay Area, Inc.
Ambassador & Advocate for The Clearity Foundation
STS Program for OCRA
Writer for Brighter Magazine

NOTE: This is a longer version of an article published in issue 17 of Brighter Magazine 

Thursday, October 30, 2025

The Importance of Early Detection in Ovarian Cancer: Linda’s Story

Recent statistics from OCRA (The Ovarian Cancer Research Alliance) reveal that ovarian cancer ranks as the eleventh most common cancer and the fifth leading cause of cancer-related deaths among women. Linda, a survivor of ovarian cancer, is dedicated to using her experience to raise awareness and educate others about identifying the sometimes-subtle symptoms and risk factors that could lead to early diagnosis.


Prior to her diagnosis, Linda characterized her health as excellent. She had been a physically active woman for the last fifty years, eating a healthy diet and maintaining the same weight she had in high school. Her only family history of cancer was a maternal grandmother who had stomach cancer in her sixties; however, Linda is of Ashkenazi Jewish descent, a factor that can increase risk of ovarian cancer.


“Vaginal bleeding was my only symptom,” Linda recalled. This alarming sign led her to contact her gynecologist, who promptly ordered a vaginal ultrasound, which revealed a large ovarian tumor. Based on her oncologist’s recommendations, Linda decided to undergo a total hysterectomy. The pathology report indicated a highly aggressive tumor, necessitating chemotherapy.

“It was shocking for me to get this diagnosis, particularly since I led such a healthy life for decades,” Linda reflected. Considering the limitations in ovarian cancer screening and detection, she considers herself fortunate to have received an early diagnosis and is now cancer-free.

For Linda, facing a diagnosis of ovarian cancer and undergoing chemotherapy was a difficult journey filled with complex emotions. “I found out that I could embrace both happiness and sadness independently and simultaneously,” she shared. Linda discovered that even while enduring adversity, which included two additional chemotherapy treatments and a hospitalization for bilateral pulmonary blood clots, she maintained humor. “Sharing laughter with my friends and family created a sense of connection and support for me during that difficult time.”

Initially, Linda feared the unknown. “Not knowing how I would respond to treatment, along with how I would proceed after treatment was completed, was daunting,” she admitted. She had sad days when she had no appetite or energy to even go for a walk. Her ability to find moments of happiness and acceptance gave her the strength and resilience she needed to face the journey ahead. She found it helpful to make future plans, whether it was having a friend over for coffee, going out to lunch, or planning a weekend trip to celebrate her completion of chemotherapy.

Discussions related to ovarian cancer sometimes involve sensitive topics, which contributes to a certain level of discomfort or taboo surrounding the subject for both patients and their healthcare providers. “My hope for increased public awareness, open conversations, and improved efforts in early detection and research for ovarian cancer is crucial,” Linda said. She notes that the progress made in breast cancer awareness, early detection, and treatment options has been significant, and there’s great potential for similar advancements in ovarian cancer diagnoses.

“If there is one thing I would ask, it is that each of you who reads this article takes away from my experience is an understanding of the symptoms and risk factors associated with ovarian cancer, coupled with undergoing annual gynecological check-ups,” Linda advises. She believes this will lead to diagnoses at earlier, more treatable stages.

Looking ahead, Linda will continue to advocate for early detection and research that will enhance screening methods and develop more effective treatments to minimize the impact of ovarian cancer.

Monday, January 20, 2025

California Fines Health Insurer for Mishandling Complaints of Delayed, Denied Claims

KQED Interview with Linda Winkler Garvin
December 17, 2024

Link to interview and article

By Katie DeBenedetti 

Anthem Blue Cross and Blue Shield office building in Woodland Hills, California, on July 7, 2022. The health insurer has paid a $3.5 million fine for failing to handle more than 10,000 member complaints in a timely manner over a two-year period, state officials said. 

As national scrutiny of health insurance intensifies, California officials have fined Anthem Blue Cross $3.5 million for mishandling member complaints over coverage denials and other issues. 

The fine stems from the company’s failure to handle more than 10,000 complaints from its members in a timely manner over a two-year period, according to the state’s Department of Managed Health Care. Patient care advocate Linda Winkler Garvin said such behavior can be medically dangerous for patients and strain their mental health as well. 

“It affects their life because many people — whether they [have] cancer or have chronic diseases or an acute problem  — need that authorization as soon as possible and within those required days,” she told KQED. “It’s deleterious to their health to not get these on time.” 

DMHC began investigating Anthem Blue Cross, also known as Blue Cross of California, after the company reported a large number of late acknowledgment and resolution letters. These are sent when a patient files a complaint, otherwise known as an appeal or grievance, after receiving a denial for health care services they requested or dealing with another delay or modification to their care. 

California law requires companies to acknowledge receiving the complaint within five days, but DMHC found that between July 2020 and September 2022, Anthem did not send acknowledgments of 11,670 member grievances within that window. More than 1,600 were not acknowledged for more than 51 days. 

Anthem also failed to resolve grievances and issue a written resolution within the standard 30-day window in many cases. More than 4,000 resolution letters were sent out late, including 1,630 after more than 51 days. 

Garvin said that there are many cases in which getting timely responses from health insurers is imperative. 

Patients who need medications to treat chronic or mental health conditions could lose progress if they are no longer able to get them covered by insurance. 

 “If there’s periods of weeks or days that the individual or the patient does not get that treatment because it’s delayed authorization, it just exacerbates the problem,” she said. 

There are also acute injuries or cancer diagnoses that require time-sensitive procedures. 

Plus, waiting on hold, following up on delayed claims or trying to get an explanation for why a claim was denied can be extremely stressful and frustrating for patients. 

“It affects them physically and emotionally,” Garvin said. “I’m talking to people, and they’re calling 12 times, 20 times and many times, people don’t get back to them. If they do, they say there’s a delay and don’t give a particular reason.” 

“It puts patients through an ordeal they should not have to go through,” she continued. 

Anthem said it has collaborated with DMHC to address the matter and takes member concerns seriously. DMHC said the company has paid the fine. 

“As part of our commitment to improving the member experience, we’ve made meaningful updates to our grievance and appeals process and invested in advanced system enhancements,” an Anthem Blue Cross spokesperson said. “These changes are designed to simplify the health care journey and better serve our members.” 

What to do with a New Cancer Diagnosis

Published in Brighter Magazine, January 2025
CLICK to download the published article

2020 was a lousy year. First, Covid-19 hit in March, quickly shutting the world down. Then in October, out of the blue, I was diagnosed with stage 2 ovarian cancer, shutting down my own world.  Before this time, as a nurse with 35 years of experience, I was aware that ovarian cancer often impacts many women of all backgrounds and is difficult to treat effectively. Despite knowing the facts, it never occurred to me that I would ever be one of those people.  

Prior to my diagnosis, I would characterize my health as excellent.  I had been a physically active woman for the last 50 years, eating a healthy diet and weighing in at the same weight I was at 18 years of age. Like so many others diagnosed with cancer, I was completely shocked to receive this news. 

Knowing how difficult it is to deal with overwhelming medical news, I decided to write an article that I hope is helpful when confronted with a cancer diagnosis. 

How to Proceed Forward with A Cancer Diagnosis 

When I was initially diagnosed, I found that, I needed to identify a “Care Partner” and/or a “Professional Health Advocate” to work with me. A care partner is someone who helps another individual. This individual/s may consist of one or more friends or relatives that can help a person newly diagnosed with cancer in several different ways. It can also be two or three special individuals who are interested in helping you and all of them can be considered care partners. In my situation my care partner was my husband.   

A patient advocate has the capacity to visualize how each aspect of care needs to be connected and in what way. A health advocate can communicate your health care needs to the medical team, help solve the pieces of the puzzle and provide necessary and customized health information. Their backgrounds can vary from an experienced former nurse or social worker, to someone who has taken classes at a university.  A professional health advocate, can be hired on an hourly basis to help you navigate your cancer journey. 

For clarification, the use of the word they refers to a health advocate and/or a care partner.  Who can play a vital role in navigating your healthcare. Here are some ways they can assist: 

  • Advocacy: In situations where you might feel overwhelmed, they can speak to your medical team on your behalf to ensure your needs and preferences are addressed. 
  • Research and Information Gathering: They can help gather information about medical conditions, treatments, and specialists, ensuring you are well-informed. 
  • Emotional Support: They offer reassurance and companionship during stressful times, helping you cope with anxiety or uncertainty.   
  • Appointment Management: They can assist in scheduling appointments and take you to your appointments. 
  • Decision-Making Assistance: They can help you weigh the benefits and risks of different treatment options. 
  • Available Resources: They can connect you with support groups, community resources, or additional services that may be beneficial.

Knowledge is Power 

Understanding your diagnosis is crucial for making informed decisions about your care. Here are some tips for approaching your research effectively: 

  • Start with Trusted Sources: Organizations like the National Cancer Institute, Mayo Clinic, and the American Cancer Society offer credible, evidence-based information. 
  • Focus on Your Specific Diagnosis: Look for materials that address your specific condition, as treatment and management can vary widely. 
  • Understand Treatment Options: Research different treatment modalities, including standard treatments and emerging therapies, to explore what might be best for you. 
  • Clinical Trials: Investigating clinical trials can provide access to cutting-edge treatments and additional support. 
  • Beware of Misinformation: Be cautious of information from unverified sources, especially on social media, as it can be misleading. 

Consider getting a second or third opinion. 

You may want to consider another opinion to confirm your diagnosis and treatment plan to ensure it is accurate and appropriate. Another physician may have a different approach or insight that could lead to better options.  A second opinion may also provide some reassurance on what you have been informed.  

Based on your research and information from your second opinions, you can discuss these findings with your healthcare team. This can foster collaborative discussions and ensure all your questions are addressed. 

Type up an Agenda for each Physician Appointment  

A written or typed agenda will help keep you focused and make sure all your questions are answered, while guiding you through the items you need to discuss. My success on getting questions answered was dependent on my preparation.  If you conduct your medical appointments like a business meeting it will help you take control of your appointment. Not only does it demonstrate your commitment to participate in your care, it reminds you of the agenda items you wish to discuss. 

My patients have benefited from writing a list of benefits and risks for each treatment recommended and reviewing the list with members of their medical team, along with family members so they can make the best decisions. 

Post Treatment Support 

Transitioning after cancer treatment can be a profound journey, and it is essential to be kind to yourself and take the time you need to adjust.  Support from your friends and loved ones will be needed at this time.  This period will be different for each person and may be ongoing. Learn about Survivorship by educating yourself about what to expect post-treatment. Resources from organizations like the American Cancer Society or The National Cancer Institute can be helpful. 

Embracing the mindset of a survivor can indeed empower individuals facing a cancer diagnosis. It fosters resilience and encourages proactive changes that contribute to both physical and mental well-being. Focusing on what you can control—like lifestyle changes, support systems, and positive thinking—can make a significant difference in your journey. 

Since navigating life after cancer treatment can be challenging, both physically and emotionally, it is normal to feel a mix of relief, anxiety or sadness after your treatment is completed.  Speaking with a professional can help you process your experiences and feelings.  In addition, getting connected with a support group can provide comfort and understanding when others have gone through similar experiences. 

Focusing on a nutritious diet that is rich in fruits and vegetables and lean proteins can be helpful.  I consulted with a nutritionist which I found to be very beneficial. Engaging in regular exercise tailored to your ability can help improve your mood and physical health.  

It’s now 2024 and things are looking brighter. Covid-19, for the most part has been downgraded to a flu like disease and I am free of cancer.  

I was fortunate enough to get an early diagnosis and early treatment. By taking an active role in your cancer care, you can feel more empowered and engaged in your treatment journey. My background as a registered nurse and currently as a health advocate have shown me how informed and engaged individuals with cancer can feel when they are part of the decision-making process.  

Cancer often acts as a wake-up call, prompting us to reflect on our priorities and what truly matters. Engaging in activities that bring joy and fulfillment can boost resilience and improve overall well-being. Whether it is spending time with loved ones, pursuing hobbies, or exploring new passions, embracing what you love can make a significant difference in your outlook.      

Linda Winkler Garvin, MSN 
Health Advocacy & Consulting 
President & Founder, Patient Advocate Bay Area, Inc. 
Ambassador & Advocate for The Clearity Foundation 
E-mail:  lindawgarvin@gmail.com 
Phone:   (510) 520-0186 


The Importance of Early Detection in Ovarian Cancer

  “Ovarian cancer is a serious and potentially deadly disease.”

“MY STORY” 

Part 1:  What Are The Signs of Ovarian Cancer 

I’ve been a medical professional for over 30 years and consider myself to be quite knowledgeable about diseases, symptoms, and risk factors, especially for the population with whom I have worked the most - middle aged and older adults. Before I was diagnosed with ovarian cancer, I knew some information about it. Mostly, I was aware that ovarian cancer often impacts people over 50 and it is difficult to treat effectively. Despite knowing the facts, it never occurred to me that I would ever be one of those people. Prior to my diagnosis, I would characterize my health as excellent.  I had been a physically active woman for the last 50 years, eating a healthy diet and weighing in at the same weight I was in high school. Like so many others diagnosed with ovarian cancer, I was completely shocked to receive this news.
 
I quickly found out how much I didn’t know. Recent statistics from The American Cancer Society reveal that ovarian cancer ranks as the 15th most common cancer and the sixth leading cause of cancer-related deaths among women. Furthermore, a woman's lifetime risk of developing ovarian cancer is reported to be 1 in 87.   

I asked myself how I could have a cancer and not know it. I discovered ovarian cancer is often diagnosed at an advanced stage because early symptoms can be subtle or absent, making early detection difficult. Vaginal bleeding was my only symptom. This led me to call my gynecologist, who quickly ordered a vaginal ultrasound which found a large ovarian tumor. Based on my oncologist’s recommendations, I decided to undergo a total hysterectomy.  My pathology report indicated that I had a highly aggressive tumor and chemotherapy was ordered.  

I was fortunate enough to get an early diagnosis and am cancer free at this time. 

Here are some common symptoms that may be associated with ovarian cancer: 
  1. Pelvic or abdominal pain: Persistent pain or discomfort in the pelvic or abdominal region.  
  2. Bloating: Feeling consistently bloated, especially if it persists for more than a few weeks. 
  3. Trouble eating or feeling full quickly: A sudden change in appetite, difficulty eating, or feeling full despite eating very little.  
  4. Frequent urination: Increased urgency to urinate and more frequent bathroom trips. 
  5. Unexplained Vaginal bleeding: Report this to your gynecologist immediately.  
  6. Changes in bowel habits: Any significant changes in bowel habits, including constipation or diarrhea.  
  7. Unexplained weight gain or loss: Sudden and unexplained changes in weight can be a symptom of various health issues, including ovarian cancer. 
  8. Fatigue: Feeling unusually tired or having low energy levels consistently. 
  9. Back pain: Pain in the lower back. 
It is also crucial to note that these symptoms can be indicative of various conditions, and experiencing them does not necessarily mean someone has ovarian cancer. However, if these symptoms are persistent and unexplained, for several weeks, it is important for individuals to consult with a healthcare professional, particularly a gynecologist. 

Part 2:  Ovarian Cancer--What Are The Chances? 

Remember that early detection is associated with higher survival rates.  

In Part 1, I shared the statistic that a woman's lifetime risk of developing ovarian cancer is reported to be 1 in 87.  However, I learned there are factors which can increase an individual’s risk. 

For example, women of Ashkenazi Jewish descent, like me, are at a higher risk.  For this reason, it is vital to know your familial history. If you have a family history of breast, uterine, ovarian, or colorectal cancer this increases your risk.  

Your family medical history can provide valuable information about potential genetic or hereditary risks for various health conditions, including ovarian cancer. Many health conditions, including certain types of cancer, can have a genetic component.

The BRCA1 and BRCA2 genes are critical in understanding the genetic risk factors for certain cancers, including breast and ovarian cancers. Mutations in these genes, or in other genes such as PAL2 or RAD51C/D,  can significantly increase the risk of developing these cancers. Individuals with a strong family history of breast and ovarian cancers should consider genetic testing to identify mutations in these genes. Genetic counselors are experts who can help you 
understand your genetic testing results, clarify risks for additional cancers and support you in the process of sharing your results with relatives and children.  

Mutations in BRCA1 and BRCA2 are about 10 times more common in those who are Ashkenazi Jewish than those in the general population.  The lifetime ovarian cancer risk for women with a BRCA1 mutation is estimated to be between 35% and 70%. 

Age is a significant risk factor in developing ovarian cancer, and the risk tends to increase with age, especially after menopause.  However, it is important to note that having one or more risk factors does not guarantee that an individual will develop ovarian cancer, and many women with ovarian cancer have no known risk factors. 

Factors that may increase your risk for ovarian cancer: 
Factors that can decrease your risk for ovarian cancer: 
  • The use of oral contraceptives 
  • Pregnancy 
  • Breastfeeding 
It’s important to stress that some women diagnosed with ovarian cancer have no known risk factors. If you think you may be at risk, I urge you to speak with your doctor, preferably your gynecologist. 

The most important message I have is to be vigilant and advocate for your health and your health care. Be attuned to any unusual or persistent symptoms mentioned above, and if they persist for more than a few weeks, take proactive steps to seek medical attention. Your awareness and proactive approach can make a significant difference in early detection and overall health outcomes. 

Knowing the symptoms and risk factors associated with ovarian cancer, coupled with undergoing annual gynecological check-ups can lead to a diagnosis at an earlier, more treatable stage. Furthermore, we can all advocate for research to enhance screening methods and develop more effective treatments to minimize the impact of ovarian cancer on women's health. 

If you or someone you care about has been diagnosed with ovarian cancer, below are some resources I have found valuable: 

Sources:   

© Linda Winkler Garvin, MSN 
Health Advocacy & Consulting
President & Founder, Patient Advocate Bay Area, Inc. 
Ambassador & Advocate for The Clearity Foundation 
STS Progran for OCRA 
 
Phone:     (510) 520-0186 
Web:        patientadvocatebayarea.com    
 

Wednesday, May 13, 2020

Making Memories: Wonderful Activities During Covid-19

Although thinking about and reviewing our lives can be difficult, taking time to process whatever had been special to us over the years, may provide some solace to ourselves, our family and our friends. It is also a great way to utilize the extra time some of you may have as we are practicing self isolation.

I am suggesting some possible projects to accomplish this task. The first idea is preparing and recording a DVD or video. Having a friend, hiring someone or doing a self made video discussing or recalling the special moments of your life is one approach. This idea can also be applied to having you ask a family member or anyone meaningful in your life if they would like a video of their life done that you could help them with.
"Important life lessons can be shared in this manner. It can be shown to children as they get older so they can understand the meaning of what is shared."
This is a great project, since most of the work for making a video, requires information gathering, organizing and focusing on the aspects of a person’s life that they want to highlight.It is extremely helpful to have an outline or timeline of the specific areas you would like to include. When doing a video of yourself or someone else, it is helpful to write some questions and responses to review ahead of time.

This is a wonderful way to let the special people in your lives know how you feel about them.

Important life lessons can be shared in this manner. It can be shown to children as they get older so they can understand the meaning of what is shared. It is important to have the individuals who will be speaking in the video, practice their responses out loud, since this will add to their confidence by helping them to be prepared and comfortable with the content.

For example, I hired a videographer to make a video of my parents’ life. My preparation included giving each of my parents a few questions to review and answer ahead of time. I provided the questions a week before the video session. The video was completed a few years before they passed and is a very special reminder of their unique personalities and relationship together.

Videos can include important transformations about one’s life from childhood to adolescence and into adulthood. They can serve as a wonderful support for individuals who will be viewing the video.You can choose anytime in your life to begin your video. It is only limited to the amount of time you would like the video to be, which can be pricy if it is too long and you have hired someone for this task.

If the idea of a video poses too many challenges, a second idea is creating a memory book. One can put important and interesting information about their life into a memory book to use as a keepsake. You can do this for yourself or help another person or family member with this interesting project. Making a memory book is another wonderful and beautiful way to document special times in your life. You can use photographs to illustrate significant memories throughout your life.

Many individuals have been doing scrapbooking as a way of remembrance for several years. You could purchase an album for this use and divide it into different categories, in a similar fashion to the way it was explained earlier for the video. Since you are in charge of what goes into the memory book, you can chose from an assortment of subjects. Birthday cards, celebrations, athletic events, recipes, photographs of friends, graduations, illustrations, poems, vacations or anything you would like to add. Similar to the outline for the video, you need to choose the content for your memory book. By choosing your content, you can have themes that are divided into various sections.

There are two hints on making a memory album. One is to use only acid free paper and the other is to choose a type of notebook/scrapbook that can have pages added. Some individuals may find it easier to write letters to special members of their family. Make sure you leave instructions on where to find the letters and address them on the envelope so the correct person is opening the letter/s. Writers can also utilize a diary or blog to leave a history of significant events in your life.

Another idea is a memory box. A memory box is open to anything you want to include. Souvenirs, photographs, tickets to an event, a family tree you have put together, achievement metals and pieces of jewelry that you may want to pass on.

Any of these ways to leave memories behind can serve as a lasting treasure. It is a wonderful way to have your life stories live on in a meaningful way.

There is an abundance of help online for creating all of these ideas and leaving the best memories of yourself and your loved ones.

Featured on the Greater National Advocates website: GNANOW.org

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